Visual Abstract

Youth newly diagnosed with T1D, and their families, require intensive education on management of this chronic condition. Traditionally, our center has conducted many hours of in-person training during a hospital admission. We studied family perceptions of our education method in an effort to elucidate strategies to augment education in the pandemic environment, where provider time in the room and visitation rules may limit face to face encounters.

Eligible patients were ≤18y and diagnosed with T1D between 8/2019-11/2020. A request to complete an online questionnaire was sent to 66 patients, with 21% responding, to date. A 5-point Likert scale assessed attitudes towards education.

Fourteen families completed the survey. Mean age at diagnosis was 9.5 ± 4.2 y with diabetes duration ranging from 2-57 weeks. Most (n=12) have been followed out to 6-months post-diagnosis with 17% using pumps and 92% using sensors. Almost all participants reported being satisfied with new onset education (Table).

Current strategies utilized to educate families of youth newly diagnosed with T1D are well received by primary caregivers. Additional strategies are needed in educating families on sick day management and on how to train secondary caregivers. Based on these results we have developed video content as an adjunct to training and are evaluating the impact of this strategy on family perceptions.


G. Betancur: None. M. N. Brei: None. K. Weyman: None. L. R. Carria: None. K. R. Stephenson: None. M. A. Van name: None. J. Sherr: Advisory Panel; Self; Cecelia Health, Insulet Corporation, Medtronic, Consultant; Self; Insulet Corporation, Lexicon Pharmaceuticals, Inc., Lilly Diabetes, Medtronic, Research Support; Self; Dexcom, Inc., Insulet Corporation, Medtronic, Speaker’s Bureau; Self; Lilly Diabetes.

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