Background: Preconception care (PCC) can improve pregnancy outcomes in women with type 1 diabetes (T1D). Little was known on current status of PCC in China. We aimed to investigate the current practice and attitude about PCC from the perspective of the patients’ family members.
Method: We conducted in-depth interviews with family members of T1D women. By purposive sampling we included their husbands, parents and parents-in-law. Transcripts of the interviews were coded into themes by 3 researchers via thematic framework method and analyzed in NVIVO 11. The recruitment ended when no new themes emerged.
Results: We interviewed 16 family members of 14 T1D women (10 husbands, 4 mothers, 1 father and 1 mother-in-law) and rendered 9 themes. 1. Knowledge of T1D and PCC: most demonstrated little knowledge of both due to lack of education. 2. Content of PCC: dietary guidance and glycaemic control were most required. 3. Timing of starting PCC: adulthood was most recommended while the rest adolescence. 4. Approach of PCC: internet and on-site consultation were well recognized while tutorials and materials as supplements. 5. Multi-disciplinary cooperation: most suggested that endocrinology professionals take the main responsibility of PCC with other professionals. 6. Attitude on pregnancy: most thought women had the obligation of childbearing while the rest showed respect to the women’s own decision. 7. Concern: worries on complications during pregnancy, inheritance of T1D, social discrimination and economic cost. 8. Doctor-patient communication: most considered the information and consultation time provided by doctors were inadequate. 9. Peer support: peer communication was mainly supported in order to convey experience and confidence while the minority opposed it fearing the spread of negative information.
Conclusions: Family members of T1D women scarcely owned knowledge of PCC and suffered various concerns. Their participation in PCC should be encouraged and mental support should be enhanced.
C. Wang: None. S. Luo: None. X. Zheng: None. X. Hu: None. J. Yan: None. Y. Guo: None. S. Xiong: None. D. Yang: None. L. Qiu: None. B. Yao: None. J. Weng: None.