The current epidemic of youth-onset T2D in minority YA requires changes to lifestyle modification recommendations that are achievable and developmentally appropriate. We used a unique approach of combining patient-centered design and conventional qualitative methods to examine lived and healthcare experiences of minority YA with T2D from an underserved area. The design team used a journey map with probes for YA to use reflective storytelling to share their diabetes journey. YA recorded important events, persons, challenges, and achievements living with T2D (Figure 1), followed by videoconference interviews. Design phase themes were used to inform a conventional qualitative interview guide for semi-structured individual interviews in a larger ongoing study. We recruited five YA with T2D for the design phase (mean age 20 yrs; 3 female; 3 Black, 1 Hispanic, 1 Asian; median HbA1c 10.8%). The design approach revealed new themes versus traditional methods: 1) surprise of T2D diagnosis and difficulty prioritizing health despite understanding need; 2) competing priority of familial financial and childcare duties; and 3) lack of guidance from healthcare providers on realistic goals for diet and weight loss. Patient-centered design is a feasible, efficacious method that enhances qualitative research to uncover breadth of themes, and should be used more often in vulnerable groups with diabetes.


T. Park: None. M.Z. Osaki: None. M. Qureshi: None. A. Jang: None. S. Agarwal: None.

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