A diagnosis of T1D can be overwhelming. Offering psychosocial support throughout the first year may facilitate family adjustment. To our knowledge, no interventions exist that promote psychosocial adjustment in families immediately following diagnosis. Family-based interventions are rarely developed with a focus on the experiences of the families who have lived through the diagnosis. This study offers a novel approach to developing a family-based intervention for youth with T1D, with content developed from the lived experiences of youth and their parents. The goal of Teaming up for T1D with Telehealth (Triple T) is to support families post-diagnosis, combining brief, targeted telehealth sessions and access to a video library depicting common family experiences during the first year. We conducted age specific focus groups to explore challenges, fears, successes, and advice of youth and their families, diagnosed within the past 2 years. Children (8-12 years; n= 10) ; teens (13-17 years; n= 11) ; their caregivers (n= 27) and parents of children 7 or younger (n= 12) participated. Main themes were sorted into topics to be addressed by telehealth visits or videos. These themes informed the development of 20 videos with age-specific themes. There were five main topics: Reassurance that they will be “Okay”; Strategies for getting to “Okay”; Managing activities; Handling disclosure and questions; and Family teamwork. Test videos were reviewed by the original focus group participants for additional stakeholder feedback. Final videos were filmed with professional actors to be used in conjunction with telehealth sessions during the intervention. Using stakeholder experience in addition to clinical experience and empirical research to inform interventions represents a novel approach to developing interventions that may directly address the needs of families and inform future interventions and education following a T1D diagnosis.


K.P.Garza: None. K.R.Howard: None. J.Weissberg-benchell: None. M.Feldman: None.


Juvenile Diabetes Research Foundation

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