Introduction: To address the rising costs of insulin and diabetes supplies, many people with diabetes (PWD) have sought support from social media (SM). We describe the impact on and individual experiences of PWD who have reached out to SM for diabetes medications and supplies.
Methods: We conducted a qualitative cross-sectional descriptive study of PWD or their caregivers who have used SM to obtain diabetes medications and/or supplies. Participants (18+ yrs) were recruited through SM by self-reported use of SM to obtain diabetes support. Interviews were transcribed, coded, and emerging patterns were combined into descriptive content categories. Analyses were conducted using a consensus model approach.
Results: Thirty individuals (27+/- 8 yrs, 87% F, 63% NHW) were interviewed, including 5 caregivers of PWD. Five main themes emerged from the data (Table). Health insurance and affordability were the most commonly reported barriers. Most respondents changed their diabetes management (e.g. rationed) as a result, and financial and medical consequences were common.. All interviewees reported fear for their or their child’s health and safety.
Conclusion: This study describes broad barriers to accessing diabetes medications and supplies, leading to potentially harmful compensatory behaviors and psychological distress. Healthcare reform is needed to improve access to these lifesaving medications and supplies.
S. Harel: None. A. Wilcox: None. J. Lukasik: None. S. C. Suttiratana: None. K. J. Lipska: Other Relationship; UpToDate. S. A. Weinzimer: Consultant; Zealand Pharma A/S, Other Relationship; Abbott Diabetes, Zealand Pharma A/S, Speaker's Bureau; Abbott Diabetes, Dexcom, Inc. J. Gujral: None. L. M. Nally: Research Support; Novo Nordisk, Medtronic, Dexcom, Inc.
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