Reporting on behalf of the VBHC-PRO-DIA Research Team.
Background: Our dedicated research team developed a national Danish digital Patient-Reported Outcome (PRO) diabetes tool to enable and advance multi-sectorial person-centered diabetes care. Now fully implemented at all 4 hospitals in our region and nationally in Denmark. 2018-2021 funded by the Danish Regions, North Denmark Region and Danish Health Data Authority.
Aim: To individualize routine diabetes care in daily practice by involving specific PwD perspectives, wishes and needs enabling targeted action plans.
Methods: Persons with diabetes (PwD) and healthcare professionals (HCP) were involved in all phases. A systematic participatory multi-stakeholder research design process with systematic involvement of +600 PwD and +40 HCP using interviews, workshops, clinical & qualitative research: 1) A minimal patient-important diabetes outcome domain set (VBHC structure). 2) A unified PRO diabetes “logic model” to use PRO to drive health value. 3) A national psychometric PRO Questionnaire & Decision-Algorithm built on nine detected domains (i.e.: treatment burden, selfcare ability, self-reported health). 4) A seamless one-click IT-tool for use of outcome data in routine diabetes care coupling the PwD and national infrastructure. 5) Datadriven implementation execution.
Results: This tool is highly accepted and shows benefits related to an active engagement of PWD focusing on person-centred individual diabetes care and adds value to the delivery of quality person-centered care.
Conclusion: We report on the full clinical national implementation of a digital scalable diabetes PROMS tool, connecting the person with diabetes, the healthcare provider and the national IT-infrastructure. Secures an individualized consultation and identifies uncovered needs and deploys action plans accordingly.
N. Ejskjaer: None.
Danish Regions - The North Denmark Region - Danish Health Data Authority
