Introduction: Caregiver diabetes distress (DD) consists of sadness or burn out; 1/3 of parents report severe distress up to 1-4y after youth T1D diagnoses. PAID-PR (Problem Areas in Diabetes Survey - Parent Revised) assesses DD in research; however, less is known about its clinical utility. We aimed to identify the feasibility of implementing PAID-PR screening at a diverse academic pediatric diabetes center during routine clinic visits.
Methods: The PAID-PR was offered in English to caregivers of all T1D patients, by the front desk at appt. check-in, or via RedCap before telehealth visits or at local sites. Adult psychosocial resources were provided to all, regardless of score. Forms were scored after visits; scores >80 were referred to Diabetes Psychologists.
Results: A total of 391 caregivers completed the PAID-PR; response rates were highest in person (>90%), vs. RedCap (25%). In total, 27% (n=107) scored >56 (DD). Of those with DD, 21% (n=23) scored >80 and were referred to psychology. Demographics are in Table 1. PAID-PR correlated to A1c (p=0.038) and inversely to child age (p=0.014). Of those with severe distress, 30% are Hispanic/Latino.
Discussion: Clinic caregiver DD screening was feasible; however, limitations were scoring/administration time constraints; we plan to screen annually. Since the PAID-PR was in English, some caregivers with DD were missed. Future directions are screening in more languages.
E. Alkhatib: None. L. Clary: None. A. Eddington: None. R. Streisand: None. S. Majidi: Other Relationship; Sanofi.
