Introduction: Due to racialized health inequities in T1D research and technology distribution, little is known about T1D technology experiences in racially minoritized youth and their caregivers. This study examines demographic and medical correlates of CGM benefits/burdens among racially minoritized families.
Methods: Fifty-seven youth aged 10-15 (Mage=12.9 ± 1.7 years, 58% male, 42% female, MT1D Duration=5.2 ± 3.4 years, MHbA1c=10.6 ± 2.0%, MCGM Wear-time=69%, MCGM Time in range= 29%, 39% pump use, 56% two-caregiver household, 32% public insurance, 56% Black/African American non-Hispanic, 26% Hispanic/Latinx/a/o, 5% white, non-Hispanic, 5% Mixed Race, 4% MENA/SWANA, 4% Another race/ethnicity) who reported <75% CGM use and their caregivers. Demographic and medical variables were caregiver reported or obtained from the electronic health record. Caregivers completed the Benefits and Burdens of CGM (Ben/Bur) form. Mann-Whitney U tests or Spearman’s Rank Correlation tests were used.
Results: The highest rated benefit was “⋯CGM makes taking care of diabetes easier” (MBen=4.4 ± 1.1) and burdens were “⋯CGM sensor readings cannot be trusted” and “⋯ CGM is painful to wear” (MBur1=2.2 ± 0.95; MBur2=2.2 ± 1.0). Increased CGM wear time and shorter T1D duration was associated with increased CGM burden (rho=0.37, p=0.02; rho=-0.30, p=0.03). Race/ethnicity, insurance, age, gender, CGM use duration, CGM time in range, and A1c were not associated with Ben/Bur.
Conclusion: In a sample of racially minoritized families, those with shorter T1D durations may still be working through the emotional adjustment process, which may exacerbate caregiver perceptions of CGM burdens. This study is limited by a lack of prior research on the psychometrics of Ben/Bur in a racially minoritized sample. Future studies should examine whether the increased burden from higher CGM use is a risk factor for negative psychosocial outcomes.
M. Vemulakonda: None. E. Straton: None. C.H. Wang: None. J. Barber: Stock/Shareholder; AbbVie Inc., Boston Scientific Corporation, UnitedHealth Group. L. Gallant: None. L. Kang: None. S. Majidi: Other Relationship; Sanofi. A.G. Perkins: Research Support; Tandem Diabetes Care, Inc., Dexcom, Inc. R. Streisand: None.
National Institute of Diabetes and Digestive and Kidney Diseases (R01DK131026)